It's a new research project to explore how researchers and others share results from genome studies.
Taking part in a 'whole genome study' will often involve the analysis of all 20,000+ genes. Although the scientists
might be trying to find the genetic basis of one disease, e.g. breast cancer, by virtue of looking across all genes in
one go, they might uncover an increased risk of developing something else, e.g. Alzheimer's. The volunteer who provided
their sample for genomic research might be interested in this information. It hasn't been routine practice to share this,
but should it be?
Aims of our research
We hope with your help to find out which information volunteers want fed back to them from whole genome studies. You
can contribute your views by filling in a 20 minute questionnaire, follow the
link on the right.
