This ethics and genomics study is being conducted by two Ethics Researchers. The team consists of:

Dr Anna Middleton, Ethics Researcher and Registered Genetic Counsellor,

and

Prof Mike Parker, Professor of Bioethics and Director of the Ethox Centre, University of Oxford

The two Ethics Researchers are part of the Deciphering Developmental Disorders (DDD) Study based at the Wellcome Trust Sanger Institute, Cambridge, UK. More information about the DDD study can be found here: www.ddduk.org

The DDD study involves a large team of scientists and informaticians and the Principal Investigators are:

• Dr Nigel Carter, molecular cytogeneticist, Wellcome Trust Sanger Institute, Cambridge, UK
• Dr Helen Firth, consultant clinical geneticist, Addenbrooke's Hospital, Cambridge, UK
• Dr Matt Hurles, molecular geneticist, Wellcome Trust Sanger Institute, Cambridge, UK
• Dr Jeff Barrett, statistical geneticist, Wellcome Trust Sanger Institute, Cambridge, UK
• Prof David Fitzpatrick, consultant clinical geneticist, Western General Hospital, Edinburgh, UK
• Prof Mike Parker, professor of bioethics, Director of Ethox, University of Oxford, UK